About 7 months ago the Pink One started complaining about a pain in her side and began having night time pee accidents. Simultaneously, we had sold our house and were preparing to move to London and so we wrote it off as "emotional trauma." About 4 weeks later we found ourselves at our paediatricians testing positive for a UTI and being put on antibiotics. She seemed to feel better while we made the move to London, but shortly after the pain and pee accidents hastily returned.
To qualify for NHS in the UK you have to have certain papers and meet specific requirements, which at this time, we did not have. Time was dragging and the pain and accidents were becoming more frequent and my frustration to get the proper paper work to qualify for NHS had surmounted to the level of desperation. Finally I took her in and found out that despite the fact that they don't have an agreement with the US, they would treat her because she was a child and was in pain. Thank you NHS. This led to another positive test for a UTI, a round of antibiotics, and a relieved mom. This lasted for only a couple weeks and then the same symptoms quickly returned with a vengeance.
At last we met the requirements for NHS and were able to further investigate into the problem that seemed to be recurring. Because of the number of UTI's she had experienced in a short time they decided to do an ultra sound test on her kidneys. The test was amazing. In the ultra sound we were able to see that her left kidney had become enlarged, urine was pooling in the kidney causing it to stretch, and that this pooling/stretching was creating a great deal of pain. Four weeks later I received a letter to go in to see the Urologist at the Children's Hospital in London. We headed up for ultra-sound number 2 where a very large and obvious kidney stone was present. Kidney stone? Kids don't get kidney stones! We were also able to see that the kidney was still enlarged and that the bladder was now unable to fully empty. This led to a series of blood tests, scans, and meetings with the Urologist at Evalina's. Because kidney stones are so rare in children the paediatric urologist had to work with the stone expert at the adult hospital (Guy's) to decide what the best course of action would be for our little piggy.
Dr. Taghazadi contacted me and informed me that he had collaborated with Dr. Glass and decided to do the more invasive of the two procedures to remove the stone. Our operation date was set and we were anxious for the Pink One to be able to get healthy, as her pain was starting to affect her simply daily activities. The day before the operation the Pink One and I took the train in to Waterloo East, walked to the hospital, and had her pre-operation assessment and admission to the hospital. The Pink One was put on 24 hour antibiotic and IV fluids prior to her procedure.
The Pink One loved that her IV bandage looked like a cast. All present were privileged enough to get to sign her "cast."
After getting on her fluids and antibiotics we went to the Radio Lollipop activities that Evalina's puts on for the patients. Today's activity was decorating Father's Day cards for dad. The Pink One had a blast with the glitter and may have even gotten a bit carried away wielding her glitter glue pen (ie a very sparkly "cast").
Tilly was the Pink One's helper, who she LOVED, and was even able to sign the "cast." The 3rd floor where we were staying was beautiful, light, and fun. They even have a school here for children who have to stay for longer periods of time. The Pink One attended school the morning of her operation before she went into "Theatre" (which is what they call surgery).
After a rough night's sleep with a corridor filled with crying little ones, we woke up and prepared for her operation. The Pink One wasn't able to eat after 2:00 a.m. or drink water after 6:00 a.m. Around 11:00 a.m. and number 2 on the list, she headed down to theatre. I went along to hold her hand as they injected her with "magic milk" aka the drug that they inject into your cannula and knock you out cold.
The Pink One with her nurse and our buff bed transport helper.
The operation was about an hour and a half to two hours long. I went and got some lunch while they operated and then headed back to our bed to wait for news that she was in recovery. When they sent me down with the nurse to retrieve her she was still very sleepy, and continued to sleep for about another hour. The operation went well and they were able to successfully remove the stone.
The stone was 33mm which is 1.2 inches in size, which is pretty big for a 5 year old size kidney. The operation that they performed involved them going through her back into the kidney with a tube, grinding up the stone, and then suctioning all of the stone, granules, and stone dust out of the kidney. The Dr. saved 2 larger bits of the stone for us, and took a 3rd piece of the stone which was about the same size as the 2 to send off to the lab for analysis. We will get the results in a while as to what kind of a stone it is and quite possibly why she would have formed it.
Day 2 of recovery and day 3 in the hospital were the worst, and by this point in time she was very uncomfortable. Fortunately, she was able to get the catheter out today and put her panties back on (which bothered her to not be wearing for some reason).
When they attach the tube that is going from the kidney out the back to the drainage bag there is an inconsistency in tube size. This inconsistency causes a lot of drainage out of the body. The poor thing was tired of being soaked by the urine and blood draining from the kidney and leaking out of the sack. We probably changed her gown and panties 6-7 times.
The two souvenir stones were the size of a child's molar tooth. The stone was originally in one piece, but was too big to be removed in one piece, so they grind it up and suction it out through a tube. When we saw the stone bits we were shocked and horrified.
This is the tube that is going into her kidney through her back to drain all of the excess fluid and blood from the kidney.


We were able to bring her home today on Father's Day, the greatest gift we could give to her daddy. We still don't know how or why she formed the stone, they really are rare in children and most children form them because of another health issue that they are struggling with. After she heals up we will have another series of scans to be sure that she hasn't started forming any more stones. Truthfully, I am not sure that we could handle another operation like this anytime soon. It was very physically and emotionally taxing, especially without family and the close convenience of friends around. We have lovely friends here, but we are so spread out that it becomes complicated having to drive so far to have someone watch your kid and then pick them back up again after a long and taxing day. We are super proud of our pink piggy and hope and pray that we don't have anymore stones in the near future. If you are interested in reading more about stones in kids click
HERE and
HERE. Now, we are all going to rest well tonight in our own beds..... together..... as a family :)